well, we took the kids to Disney, surprised them, got in the car, they were surprised, it was fun, and it was HOT!!! heat index of 110 or more every day, and in the back of my mind every day was "what if" what if he has a seizure, what is he has a stroke, what if he isn't ok....well, he was, for the most part ok. only a few small things stuck out to me. he refused to eat almost anything. he drank a lot ( I will take that in the heat!) his sweat smells like vinegar (not sure what this means) and he is aggressive in the heat. He punches, he kicks, he screams, he pinches, he stomps his feet...sigh...so we shall see what all this means, but what it does mean, is that we can go places, for now, he is a "normal" healthy child who can travel with very few meds, and as long as we keep Milk out of his body, and put Culturelle in every few days the bloating has been down.
We have an appointment with Pediatrics in September to talk about the fits, they are not normal two year old temper tantrums, and he is not easily distracted or easily redirected, so we will work on it.
I am, on the other hand, applying for jobs. I need to work, he needs time away from me, and I need to feel important. I know taking care of him is a lot, taking care of all of the boys is a lot, but i need something that is mine...so that is where the Johnson family is at right now. one day at a time...